SYMPTOMS OF LYME
LYME SYMPTOM WORKSHEET
Before seeing your physician, I recommend that you print and complete the Lyme Symptom Worksheet so that you have a comprehensive document detailing your symptoms and their severity. I also recommend that you make a copy and give your doctor a copy to keep for his records.
Due to the fact that Lyme symptoms tend to come and go, each symptom has three letters:
B = BEFORE
Symptom occurred or present BEFORE any possible bite and are unrelated to Lyme
P = PAST
Symptom experienced in the PAST but is not currently an issue
N = NOW
Symptom is being experienced NOW or recently.
Yes No You saw the tick bite.
Yes No You had an Erythema Migrans Bulls eye, or other rash that may have resembled a bruise.
Yes No After experiencing the bite or a flu-like episode,you started having one health problem after another or have not felt completely well since.
Yes No You have persistent malaise, with periods of worsening symptoms, often cyclical, repeating every so many days, weeks, full moons, or seasons.
Yes No Your symptoms wax and wane, come and go and new ones appear. Some are dramatic and others merely annoying.
Yes No You find yourself describing your symptoms as weird or bizarre.
Yes No Whenever you are stressed your pain rises to a higher level.
Yes No Whenever you bump, strain, or injure yourself the healing time is exaggerated.
Yes No You have an exaggerated response to alcohol.
Yes No In babies: Failure to thrive. Delayed development.
Yes No You appear deceptively well, even when in intense pain and feeling terribly unwell.
Yes No All your medical tests have returned negative
B P N Reddening usually of the palms, soles, or upper cheeks.
B P N Pinna and ear lobes have varying shades of red.
B P N A benign nodule or tumor on ear lobe, nipple, scrotum (Lymphocytoma)
B P N Progressive dermatitis of hardened erythematous plaques that eventually give a tissue-paper appearance to the affected areas (Acrodermatitis Chronica Atrophicans)
B P N Sensation of water dripping on skin or tingling sensations (like an insect crawling on skin)
B P N Cysts or Polycystic Kidney or Fibrocystic Breast Disease.
B P N Nodules in peripheral nerve sheath.
B P N Eczema, hives, blotches, patches,welts, sun burn like, or poison ivy like rash and on dark skins may resemble a bruise and reappearance of Bulls eye rash from time to time.
B P N Burning pain like; sunburn/freshly scraped skin embedded with sand.
B P N Spots or areas on the body that suddenly become extremely sensitive to touch.
B P N Skin flushes
B P N Scalp rash
B P N Fingernail changes such as vertical ridges, curved under, flat in center
B P N Unusual, extreme, persistent fatigue. Mimics Chronic Fatigue Syndrome
B P N Instantly falling asleep, at anytime. Mimics Narcolepsy
B P N Pauses in breathing when asleep. Mimics sleep apnea
B P N Difficulty falling or staying asleep or unable to sleep or to have a deep sleep.Insomnia
B P N Sleeping too much.
B P N Vivid nightmares
B P N The high level of pain throughout the body prevents falling asleep.
B P N Being awakened in the middle of the night by sudden severe arthritic pains throughout entire body that are excruciating, and dramatic and then are gone by the next morning.
HEART AND RESPIRATORY FUNCTION
B P N Chest pain, inflammation in and around the heart.
B P N Chest pain, shortness of breath, palpitations, floppy valve
B P N Fainting, wooziness, dizziness, lightheadedness, and palpitations
B P N Fever, fast heart rate, fatigue, sweating, low red blood cell count.
B P N Heart rate/pulse is faint, rapid, or irregular.
B P N Whooshing or swishing noise in heart beat.
B P N Respiratory infections, asthma, pneumonia, pleurisy.
B P N Can't get a full or satisfying breath.
B P N Shortness of breath, laboured breathing, or gasping
B P N Cough (non-productive, odd, unexplained)
B P N Congestive Heart failure
B P N Inflamed blood vessels. Vasculitis
B P N Elevated blood pressure or Low blood pressure
B P N Stroke
B P N Feeling short of breath and find it harder to exercise.
B P N Have chest pain or chest discomfort or a feeling that your heart is pounding or fluttering
B P N Disturbances of tongue,gag reflex, and swallowing. (Numbness)
B P N Gastroesophageal reflux /Rumination Disorder / frequent heartburn.
B P N Eating disorders; under or over-eating. Not knowing when hungry or full.
B P N Unexplained weight gain or weight loss.
B P N Stomach pain, upset stomach, nausea, vomiting.
B P N Belly pain, abdominal cramps, bloated belly.
B P N Intestinal spasms.
B P N Unusual constipation: putty like/unresponsive to laxatives. (Stops for many days and suddenly restarts for no particular reason)
B P N Unexplained diarrhea. (Sometimes blood in runny stools) (Mimics Irritable Bowel Syndrome)
B P N Colitis (inflammation of intestine) Mimics Crohns disease
B P N Reluctance to go to school/work /going out to eat because of bouts of diarrhea.
B P N Rectum/bowel spasm during night(urge to defecate).
B P N Fecal soiling in children after being trained.
B P N Mild Liver disorders; infection, enlargement, inflammation, elevated enzymes
B P N Intestinal Microbial Flora imbalance
B P N Gallbladder and bile duct disturbances. Extremely painful gall bladder.
B P N Extremely painful pancreas.
B P N Change in smell/taste.
B P N Difficulty chewing, swallowing, or speaking.
B P N Frequent heartburn.
B P N Heightened response to alcohol, sweets or caffeine.
B P N Neurogenic bladder (wrong messages going to bladder): Underactive/overactive. Tiny stream. Straining to urinate. Hesitancy. Bladder not emptying completely. Inability to urinate. Frequent urgent need to urinate with difficulty to suppress. Loss of bladder awareness. Emptying instantly upon movement. Urine leakage. Sudden inability to contract muscles.
B P N Bladder pain relieved by urination.
B P N Bladder & Kidney problems (including bed wetting especially in children)
B P N One extremely painful kidney.
IMMUNE AND ENDOCRINE SYSTEMS
B P N Thyroid and other glandular dysfunctions
B P N Spleen: Tenderness, enlargement. Extremely painful spleen.
B P N Swollen lymph glands/nodes
B P N Over production of nonadrenaline
B P N Decreased energy. Tire quickly. Declining stress capacity.
B P N Inflammation in many areas of the body.
B P N Increase of interstitial fluid. E.g., lungs, ankles etc.
B P N Over-Yeasted, sugar craving. (Candida)
B P N Allergies increased or new ones.
B P N Continual infections (e.g. sinus, kidney, yeast, bladder, etc.)
B P N Body temperature feels unregulated
B P N Can't stand hot or cold temperatures.
B P N Body temperature below normal
B P N Ice cold body parts and patches anywhere on body that do not match environment.
B P N Unexplained sudden over-heating throughout body.
B P N Unexplained chills (difficulty getting warmed up)
B P N When sleeping: Night sweats or sudden intense body heat.
B P N Unexplained sweats/fevers/feeling very hot day or night.
JOINTS AND MUSCLES
B P N A sudden bout of arthritis with swelling, redness, and pain in one or a few
large joints, typically the knees, that persists, or no longer persists, that may have left the affected joints distorted.
B P N Joint pain usually large joints and swelling around joints.
B P N Creaking, popping, or cracking joints
B P N Joint stiffness
B P N Bone sensitivity
B P N Sudden agonizing bone pain of an entire length of a bone, the entire rib cage, or all bones connected to any single bone, sometimes too sore to touch.
B P N Sudden "axe-like/broken bone" type pain in a bone, especially near a joint when asleep or in awake time also.
B P N Tenderness in lower shin medial tibia shaft bone.
B P N Foot, ankle, and heel pain Mimics plantar fasciitis
B P N Deep aches and burning in palms/soles of feet.
B P N Muscle cramps and spasms (all over body)
B P N Throughout body; Muscle tenderness and pains of varying intensity as if over-stretched, bruised, cut, scraped, injured, burned, sharp, dull, or aching. Mimics Fibro myalgia, including tender points that come and go.
B P N Tendon and ligament pain.
B P N Tingling, numbness, weakness, or pain felt in the hand, forearm, or wrist upon awakening from sleep. Arm(s) inflamed and swollen, for no reason.Mimics Carpal Tunnel Syndrome (tennis elbow)
B P N Muscle weakness/Body weakness
B P N In babies; Low muscle tone
B P N Unexplained backaches. Deep and steady pain in spine that feels as if it radiates from pressure on the nerves surrounding it or as if the pain comes from deep inside of the spine. (Any place on length of spine)
B P N Intense pain, mostly in the lumbar and cervical regions radiating to the extremities, or disk disturbances.
B P N Abnormal brain waves, seizures, mini blackouts, periods of confused memory, episodes of staring, unexplained periods of unresponsiveness.
B P N Fainting spells
B P N Abnormalities of taste or smell (Peculiar metallic or salty taste).
B P N Visual, odor or auditory hallucinations
B P N Tremors, unexplained shaking, jerking, twitching.
B P N Shocks, sharp jabbing, and shooting pains anywhere in the body
B P N Sensations in the body of pinpricks, stabbing, burning.
B P N Sensations of vibration or flutters.
B P N A sensation of wearing an invisible "glove" or "sock"
B P N Numbness in parts of the body and/or extremities.
B P N Increased motion sickness
B P N Difficulty walking or moving the arms because of high level of pain.
B P N Dizziness, poor balance, weakness, or partial paralysis of limbs, loss or diminished reflexes or coordination.
B P N Feet/legs experience poor automatic response; Tripping, walking into things, clumsiness, not knowing where your feet are.
B P N Burning, freezing, throbbing, shooting pain in limbs, hands and feet or toes and fingers or all, that is often worse at night and is felt equally on both sides periodically or constant. Lyme Peripheral Neuropathy
B P N Involuntary movement of arms, legs, and digits.
B P N Irresistible urge to move legs; sensations include: creeping, itching, pulling, creepy-crawly, tugging, or gnawing in legs. Restless legs syndrome
MENTAL AND EMOTIONAL
B P N Feeling you are losing your mind/going crazy because the people around you disbelieve the reality of your pain, disabilities, and deteriorating health.
B P N Suicidal thoughts for relief from physical/emotional pain and/or suddenly suicidal.
B P N Unusual sadness, hopelessness, guilt, or depression.
B P N Mood swings.
B P N Over-emotional reactions to fit the situations.
B P N Easily frustrated, irritated, agitated, short tempered.
B P N Sudden explosive irritability for no apparent cause.
B P N Aggressiveness. Lyme rage.
B P N A lot of activity or noise within environment triggers extreme agitation.
B P N Sudden moments of suspiciousness/paranoia.
B P N Trying to do everything during periods of feeling okay and total inactivity when laden with pain.
B P N Periods of extreme high energy to extreme lows. Mimics Bipolar Disorder.
B P N A driving need to do something repeatedly and having much anxiety if unable to do it.
B P N Persistent thoughts that cause anxiety/distress.
B P N Experiencing anxiety most of the time, for no reason.
B P N Panic attacks.
B P N Feeling detached from ones self or reality. Feeling of unrealness
B P N Always hurried, even without a deadline.
B P N (Students) Uncooperative, defiant, negative. Rebellious and annoying behaviors.
B P N Personality change. Saying and doing something unlike your usual self. In children a decreased interest in play.
COGNITIVE AND MEMORY ISSUES
B P N Brain fog; Like a cloud reducing your visibility/clarity of mind.
B P N Brain block when trying to focus.
B P N Difficulty in thinking and processing information.
B P N Difficulty in planning and organizing
B P N Difficulty in problem solving
B P N Difficulty to see or take in the whole picture.
B P N Difficulty with multitasking.
B P N Difficulty to think quickly and to respond quickly.
B P N Difficulty with judgment; Saying something without processing it correctly. Inability to think it through and its consequences.
B P N Difficulty making decisions.
B P N Difficulty estimating/figuring time.
B P N Difficulty with calculations. (Holding numbers in head)
B P N Difficulty getting started or completing a project.
B P N Difficulty learning new tasks.
B P N Problems with letter or number reversals (Mimics Dyslexia)
B P N Intermittent spelling and writing difficulty.
B P N Difficulty maintaining focus or concentrating. Easily distracted. Racing thoughts. Impulsive. Mimics Attention Deficit Hyperactivity Disorder
B P N Difficulty to keep up to a conversation or to understand what is being said.
B P N Interrupting others in mid conversation or contributing to the conversation long after it is finished.
B P N Difficulty in expressing ones self. Difficulty in word finding. Speech comes out as stammering, slurred, slow, hesitating.
B P N Emotional and expressive incontinence
B P N Slow processing, recalling, or remembering of information or what was read.
B P N Difficulty with basics, social, and day to day functioning.
B P N Declining performance in school or work.
B P N Feeling a significant decline in intellectual acuity
B P N Feeling a loss of competence.
B P N Child who is misbehaving in class.
B P N Intermittent distorted memory. Short/long term memory lapses. Suddenly forgetting how to perform a task, but remembering later. Mimics Alzheimer Disease
B P N Tendency to get geographically disorientated; suddenly forgetting where a familiar destination is. Getting lost. Going to the wrong place. Going past the right place (as in severe sudden absentmindedness.)
B P N Testicular or pelvic pain
B P N Sexual dysfunction/ Loss of sex drive
B P N Unexplained menstrual pain, irregularity, flooding/ endometriosis
B P N Extreme PMS symptoms
B P N Unexplained breast or nipple pain/ discharge
B P N Reproduction problems; miscarriage, stillbirth, premature birth, birth defects, neonatal death, congenital Lyme disease.
HEAD, FACE AND NECK
B P N Inflamed brain; fever, headache, nausea and phobophobia. Lyme Encephalitis
B P N Inflammation of the membranes/fluid just beneath skull surrounding the brain and tissues surrounding spinal cord. Headache, flu-like malaise. Aseptic meningitis
B P N Long-lasting,(weeks to months) persistent/severe/ head pressure /congestion /burning/inflammation of the meninges layers covering the brain.(Chronic meningitis}
B P N Burning in the brain, neck, and spinal cord as if inflamed.
B P N Swollen forehead or edema in forehead.
B P N Stiff or painful neck. Lightheadedness, wooziness, feeling off balance
B P N Numbness usually only on one side off the face Lyme's Bell's palsy
B P N Facial neuralgia's: Twitching of facial muscles (tics), sensation of sharp facial pain, crawly feeling, or itching, tingling of nose and other facial parts.
B P N Sensation of a spider web or loose hair fallen on face.
B P N Drippy nose (unexplained) Mimics sinus disease
B P N Sore throat, chronic cryptic tonsillitis, clearing throat, phlegm, hoarseness.
B P N Cracks around sides of mouth. Dry mouth
B P N Facial flushing (red face)
B P N Loss or altered sense of smell/hearing/taste.
EARS AND HEARING ISSUES
B P N High pitched whining, buzzing, clicking, ringing, buzzing, hissing, humming, ticking, whistling, roaring, beeping or a "whooshing" sound, as of wind or waves, or other sound in one or both ears.
B P N Dizziness & equilibrium disorders.
B P N Pain in ear(s) with no medical cause.
B P N Sound sensitivity (Some noises causes extreme irritability)
B P N Decreased hearing in one or both ears. Plugged ears
B P N Dental problems; chronic gingivitis, receding gums, thinning enamel.
B P N Sudden pain within each tooth
B P N Painful gums
B P N Painful/stiff jaw, difficulty chewing. mimics TMJ
Eyes and Vision Disturbances.
B P N Increased Floaters (like internal eye dust)
B P N Floating black specs
B P N "Spots" before eyes
B P N Flashing lights/showers of sparkles.
B P N Kaleidoscope movement in sparkle.
B P N Looking through waviness/wigglyness
B P N Phantom images
B P N Sudden loss of partial vision (half vision) that later returns.
B P N Sudden blurred/"foggy" vision.
B P N Vision loss/Blindness
B P N Sensitivity to light
B P N Pain behind or in eyes. Swelling around eyes.
B P N Inflamed, itchy eyes, watery eyes.
B P N Conjunctivitis, pink eyeball, or prominent red veins.
B P N Eye redness, bloodshot eyes, and irritation.
B P N Pressure in eyes
B P N Dry eyes
B P N Drooping of eyelid
B P N Wandering or lazy eye.
B P N Abnormal pupil size, papillary dilatation
B P N Feeling as if something is in the eye